When blood speaks silently: Para on the day of the world hemophilia | Health
When the body is bleeding without a visible injury, and the wounds look shadow under the skin, and quietly screams for attention. That’s it Hemophilia – A delicate disease that requires early diagnosis and comprehensive care. Today, Para has joined the global equation The day of the world hemophilia, Dedicated date for understanding of these disorders, bleeding heritage or earned.
Currently, in the state, 497 patients with hemophilia Type A (391) and B (106) are attended by para centro of hemotherapy and hematology foundation (hemopa). One of them is graphic design Marcio Mafra Dose Santos, 39. He has been 7 years old, he lived with this situation. “My mother noticed my wounds on her body and soon led me to the blood center in the vicinity of Juranas. There they found them that they had hemophilia.
Said Marcio Awareness is basic To ensure an early diagnosis, access to treatment and improvement in the quality of life of patients. “I believe this is very important because I can take this medicine shadow home and get self -imprisonment and consequently have a normal life.”
Hemophilia affects blood clots and becomes internal and external bleeding, often spontaneous. Marcio’s commentary contains multidisciplinary care along with missing or disabled freezing factors. This information is described by Himopa’s ATT Patient Care Coordinator Side Maria Sarmento Tridade.
She explained that there are two major types of disease: A HIPA HIPO A, It comes due to a freezing factor error or absence Homelia B, The factor is due to the absence of IX. There are two types of long bleeding after medical cuts or procedures, sudden internal bleeding – especially in the joints and muscles – and often with the same symptoms. “Sometimes it is a nose bleeding or injuries on the joints. Pre-diagnosis can be done with a coagulorama, and we have found what factors can cause disorder,” the doctor said.
In 2025, a campaign promoted by Himopa, through the World Hemophilia Federation (WFHH), “All: Women and Girls Also Bleeding”, highlights the theme of bleeding, and attracts attention to the low directing and low diagnosis of these disorders in women and girls.
“Most women face serious bleeding and symptoms that compromise their quality of life. We are expanding access to our commitment, strengthening the care network, and ensuring that all people with bleeding disorders are eligible,” said the side. She reported that more than 100 servers operate in Himopa and are considered “gold” by the World Hemophilia Federation and the World Health Organization (WHO).
Disease data in Brazil
In Brazil, over 24,000 people live with bleeding heritage disorders, according to the Brazilian Association of People with Himophilia (Abafem). Referring to this date, the National Congress is bright in red on April 16 and 17, as part of the “Light It Up Red” in the global campaign, which tries to give visibility to those with bleeding disorders.
