“I am independent and work, I know I am an exception.”
Agustín Campos is 42 years old From 3 or 4 years, he was diagnosed with him Nervous tumorWhich is a group of Rare diseases That is prepared to develop Good tumors around nerves and skin.
There are three types, which is 1, which is owned by Agostin, is the most common, and inside it is a rare disease, and it is one of the most common types, because it is It affects one in every 3000 peopleS, “type 2 affects one between 15000 and Schwanomatosis to one in every 45000,” explains Agustín.
This disease, inherited by 50 %, has many manifestations, “in my case, it is believed that it is” Novo “, not an inherited, and I was diagnosed with 3 or 4 years. Until then they had doubt that something had happened, because I had many things, such as intolerance, but they did not know where it came from. There are people who influence them in a very dangerous way “Others have already been less serious in my condition, but they can face adequate problems,” he says.
In his case, although he put some barriers, he was allowed A completely independent lifeBecause it is part of that small percentage of people with rare diseases who have been able to get a job, because only one in three they achieve this, “I have been evident in several ways. I have an opinion It affected psychological breathing skills… you have always needed a treatment for speech, supporting physical therapy … “
Entering full work
Despite nervous swelling and With a lot of effortAgustín first managed to finish the institute, then a higher degree of computer science, and finally, technical engineering, “I must admit that in this race my parents helped me a lot, because my mother is mathematics and my father was an engineer,” he says.
Looking at the request of his sector, he did not cost him to find work. In fact, in your current company, Sopra Speria, He was in several positions for 14 years and he was“I know I am an exception, and that the statistics say it is more difficult, but in my personal condition, I must say that I haven’t had any problem in finding a job. I almost finished from the university, I was already in a company, and after a short time in Sopra Stera, I opened my doors and here,” he confessed. “
In my company, they already know that there are things that cost me more, so they give me more time to do
In this company, it was in many projects and different types, and although it does not need many modifications, yes Define flexibility and the ability to adapt To carry out some tasks, “Sometimes there were things that cost me that adapted to me without problems, so I am very happy. I started to develop, I was also in a project related to cybersecurity and a little more than a year, I am in managing reprimand. They already know that there are things that cost meSo they give me more time to do it. Once I had some problems with some classmates, but a little, really. He was in my previous company. In this company, I must realize that they greatly prefer to integrate all people, diversity … we are several DisabilityThis is appreciated. “
The exception confirmed by the standard
Agostin is known for what he tells him in Fibroid tumor is affectedWhich is also the president, that there is a lot of the disease they face daily, especially those who have one of the most distinctive signs of nerve fibers, Rubs on brown skin“There is affected that they have a lot, and some of them are so great that they come to distort the face,” explains, “These people tell us that they felt very distinguished, at the institute, and when finding work, they feel rejected and reference … and they have a very bad time,” regrets.
To end this type of discrimination, Agostin asks, above all, Awareness and publishing campaignsAnd even within the companies themselves, “here they always benefit from the world’s disability days, women, and rare diseases … in favor of integration, but in general, there are many. There are companies or colleagues who are not employed or They have a frequency Because they believe that we will not strive, we will not comply with our work or we will go to the doctor when this is often the opposite, We are striving to try to reach what the rest of the study’s colleagues do. We are doing more effort to show its value, because we are equally valid than those who do not have a rare disease or disability. “
To show this, he puts himself as an example and invites companies to bet on them, “I am working, I am applying well, I only live with my cat and I can live independently. It is true that from time to time, I need help for something and they must throw a cable, but who is not? ”
