Era Mantian, a journalist who does not give in her fight against high radio cancer

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When he received the news that changed the course of his life, Era Mantian Boa I was 30 years old, an intense group of experiments as a tanned correspondent in conflict areas and a lot for the most recent. At that moment you know he had cancer It is considered ultrarao. Given the lack of treatment options and studies on his illness, he decided to take matters and allow her to his press professionalism in searching for information and responses that have witnessed, a decade ago, for her fighting personality, and she opened the roads and also raided other people with similar cases.

In recent months, relapses have occurred suddenly, their situation has exacerbated, and criticism is now, due to many brain malignant tumors. But Era, away from surrender, Continue to fight in search of Cura As an indescribable journalist, he continued to document his story and novel, which he is now participating in a phone conversation with “Euronews”.

Ten years ago, she was diagnosed with a kind of Sarcoma Ultrarao (called Mixoid outside Condrosarma) that affects a person between every million. It started as a bloc in the right leg, which he noticed while submitting a report in Egypt. After the diagnosis, he had to leave his home and profession to return to his hometown, La Corunia (Galicia, northwestern Spain), in order to focus on his recovery.

But for him Journalist He did not leave it. On the contrary, he gave him “other glasses to see the world” and “save his life”, as he explained. “As a correspondent for war, you know how to collect information, you know how to move, and this has earned me a lot to move with Ultrarao’s cancer,” he says.

For years, documented his steps to explore and test experimental treatments to try to shed light before Lack of specific studies and treatments For your illness. Its design led her to find a group assistance group (Sarkoma Association)To work), Who helped with others affected by different types of sarcoma throughout Spain, in an attempt to direct hopes and contribute to other hopes like it, with a clear goal: “The next Ira was easy.”

Cancer extends to the brain

However, since the end of December 2024, the Iara and their surroundings “are on a maximum alert”, after the blood began to spit and have to run to the hospital. They told him that he had Pulmonary They quickly run it “life or death”. The process went well for ten days, but in mid -April he gave his life another transformation, when they told him he had had Six brain tumor in the brain.

It has exceeded cancer Hemato checkpoint; However, the treatment he received did not pass. He explains that what started the Ultrarao crows has become more strange, as only 15 cases of this type were reported in the world. The first expectations after this news indicated that he had little time in life. Cancer spread through their lungs, pancreas and brain. But Era Valervira in his battle: “They have given me days, and I hope to heal this disease.”

His battle also faced the “maze” of the regime

The conflict that also made it from Bruks with a “maze” in the health system, because the decentralization of medical care in Spain by independent societies has placed obstacles on its way, and it regrets. It is currently accepted in Madrid in San Carlos Clinical Hospital After her derivation from Gallisia, through a protocol that facilitates attention in one of the seven reference centers of Sarkoma in Spain today. but deriving Of self -government societies, it is not mandatory or can be implemented with delay.

“The ideal is to be One health Or that deriving To the reference center was mandatoryAnd that is why Asraga is struggling, “the association that was founded. They do this” do not have to fight, but under the law, any sarcoma patient is treated in a reference center. That day depends on whether societies are derived from you, on the oncology specialist … and many lives are lost Speed ​​in derivation is necessary. It also indicates that the hospital in La Coruña “has always been behaving very well”, and blames the difficulties in the complexity of the system. Therefore, “one health” is called not only at the state level But EuropeIn order to facilitate attention in the centers that offer the largest guarantees as it might be.

“If you go to a specialized center, they can prolong your lifeJose Ramon Mantinan, brother of Era, who worked in Germany and asked for leave with her in Spain. And he adds: “The more these procedures are implemented, the more the patient’s life is extended and less likely to die.”

Press and patient expert

Again, in this case, Iara’s press skills helped to split her way, but now he wants to make it easier for the rest to continue with him Useful work. “I decided to move from La Corunia and the lack of platforming care because she already knew that there is another different option in Madrid in a reference center,” says Jose Ramon, who attributes her to the fact that Era uses his press tools and “There are always three steps” to collect all possible information.

Something related to a personality ExpertThis claims to be “a revolution” where “the force does not only have doctors but also patients.” The idea is that, with their pre -emptive position, these are experts in their illness and recognize them as this role.

However, the last extension of the road was not easy, as his brother explains: “We had to do the impossible to come to Madrid, because his extraction She had to pay her medical ambulance From La Coruña to about 4000 euros from her pocket. ”

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Hope in innovative treatments

Nowadays, Iara receives a treatment Combining chemotherapy with immunotherapyBut you are studying new options like Car-T cell treatment Hope is also called for the development of promising Therapeutic vaccines Against cancer.

“The problem is to enter Clinical experiments Jose Ramon says at the present time, the most common cancer, not scarcity like my sister.

At the same time, he maintains his daily struggle with a feeling Dental Especially towards many professionals who helped her, such as Dr. Cassado, from San Carlos Clinical Hospital (“Her Champion”), Dr. Camello and Director Louis Verdi, from the University Hospital Complex in Coronia (Coach).

Even if he sees “everything against”, Iara does not hesitate to share its goal: “I want to heal from cancer and Help find cancer treatment For all patients. I will show this, although cancer is present in the brain, although it expects days of life, even if I have an advanced issue with 15 cases in the world where there is little treatment. “The goal also testifies to the position that directs its way, and that Iara is summarized by the slogan:” He insists and continues and never surrenders. “

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